Genetic photosensitivity disorders

We will check your records against each of these. Every item comes straight from SSA's own listing.

• A
  • You have xeroderma pigmentosum (XP), confirmed by clinical findings and laboratory testing showing abnormalities in your body's ability to repair DNA after ultraviolet light exposure.
  • If XP is properly documented, no separate proof of functional limits is required.
  • Meeting this alone satisfies the listing.

  Read the original wording

  You have xeroderma pigmentosum (XP), confirmed by clinical findings and laboratory testing showing abnormalities in your body's ability to repair DNA after ultraviolet light exposure. If XP is properly documented, no separate proof of functional limits is required. Meeting this alone satisfies the listing.

  (Listing 8.07, criterion A)

• B1
  • You have a genetic photosensitivity disorder other than XP, confirmed by clinical and lab findings, and your chronic skin lesions or scar tightening (contractures) mean you cannot function outside a highly protective environment — you must avoid all UV light (even sunlight through windows and unshielded indoor lights), wear protective clothing and eyeglasses, and use opaque broad-spectrum sunscreen.
  • This is one alternative under paragraph B; you need either B1 or one of the B2 options, not both.

  Read the original wording

  You have a genetic photosensitivity disorder other than XP, confirmed by clinical and lab findings, and your chronic skin lesions or scar tightening (contractures) mean you cannot function outside a highly protective environment — you must avoid all UV light (even sunlight through windows and unshielded indoor lights), wear protective clothing and eyeglasses, and use opaque broad-spectrum sunscreen. This is one alternative under paragraph B; you need either B1 or one of the B2 options, not both.

  (Listing 8.07, criterion B1)

• B2a
  • Your confirmed genetic photosensitivity disorder causes chronic skin lesions or contractures that make you unable to use either arm or hand well enough to start, keep doing, and finish work tasks that need fine movements (like pinching and fingering) and gross movements (like gripping, reaching, lifting).
  • This is one of the alternative ways to satisfy B2 — only one of B2a–B2d is needed.

  Read the original wording

  Your confirmed genetic photosensitivity disorder causes chronic skin lesions or contractures that make you unable to use either arm or hand well enough to start, keep doing, and finish work tasks that need fine movements (like pinching and fingering) and gross movements (like gripping, reaching, lifting). This is one of the alternative ways to satisfy B2 — only one of B2a–B2d is needed.

  (Listing 8.07, criterion B2a)

• B2b
  • You cannot use one arm or hand for work tasks needing fine and gross movements because of chronic skin lesions or contractures, AND your medical records show you need an assistive device (like a cane, crutch, or walker) that ties up your other arm.
  • The device need must be documented by a medical source for at least 12 continuous months, though a prescription is not required.
  • This is one alternative under B2.

  Read the original wording

  You cannot use one arm or hand for work tasks needing fine and gross movements because of chronic skin lesions or contractures, AND your medical records show you need an assistive device (like a cane, crutch, or walker) that ties up your other arm. The device need must be documented by a medical source for at least 12 continuous months, though a prescription is not required. This is one alternative under B2.

  (Listing 8.07, criterion B2b)

• B2c
  • Because of chronic skin lesions or contractures affecting at least two limbs (or involving the groin or perineum area), you cannot stand up from sitting and stay upright well enough to do work activities.
  • This is one alternative under B2.

  Read the original wording

  Because of chronic skin lesions or contractures affecting at least two limbs (or involving the groin or perineum area), you cannot stand up from sitting and stay upright well enough to do work activities. This is one alternative under B2.

  (Listing 8.07, criterion B2c)

• B2d
  • Chronic skin lesions or contractures affecting both legs (or involving the groin or perineum area) keep you from staying upright while standing or walking well enough to do work activities.
  • This is one alternative under B2.

  Read the original wording

  Chronic skin lesions or contractures affecting both legs (or involving the groin or perineum area) keep you from staying upright while standing or walking well enough to do work activities. This is one alternative under B2.

  (Listing 8.07, criterion B2d)